Key Facts No 9
What else can we do?
Greater awareness of PAH will help patients and their families get support they need when living with this life-changing disease.
Gust, a PAH patient said, “It is no exaggeration to say that PH has turned my life upside down. From being a busy and independent person I have become very restricted in what I can do. On a bad day even having a shower and getting dressed can be an enormous struggle. My family and friends have been very supportive but most people just don’t understand the challenges that I face and why I can’t lead a ‘normal’ life”.
For further information, help and support please contact your local PH patient support organisation (www.nzpah.org.nz) or visit www.phaeurope.org whom we thank for permission to reproduce ‘Pulmonary Hypertension Key Facts.